Autism is like red hair
No joke. Autism happens in about 1.85% of people. Guess how many people are born with red hair? Yep, one to two percent.
I’m bringing this up because I feel like we need to work on the acceptance of people with autism and what makes them uniquely fabulous, like we do with redheads.
Help me take out the negative stigmas that come with autism. It’s not just kids, either. Kids with Autism become adults with Autism. What I’ve learned is that what doctors usually say a kid grows out of is often them “masking” or learning to conform within society constraints without really understanding context.
My son Darrin has autism. He also has Tourette’s syndrome.
This is something that WE are more or less used to. His expression of autism is not just he’s socially awkward or misses social queues. Darrin is almost always in a constant brain spin on fourteen different things. He expresses it by using his hands to represent the “voices” or scripts going on in his head. He is always talking-very seldom does he stop talking. It’s mostly to himself with the scripts of the programs he watches and he will be very LOUD not realizing how loud he is. With all of this, he is 18 and looks like a young man. He is almost 6ft tall and over 200lbs-but he thinks he is still a child around 6-8. He will probably remain about 8 years old developmentally for the rest of his life. He is our man child. We love him dearly.
Something else about Darrin, he has no ego, he is always in the moment, he is very keen on people’s suffering, and he is unaware of others who might be disparaging to him-THANK GOD. I’m going to tell you a story.
Yesterday when Darrin came home from school,
we talked about going to get him cards to write back to all his friends who sent him letters through the mail. So, we hop in “CHEETAH” (our orange Jeep) and I give him the list. “We’re going to the bank, to UPS, and then to Target to get your cards.” The ride to the bank Darrin played the script in his head about all the “Higglytown Heroes” which is a children’s show that talks about different jobs. So, when we get to the bank, Darrin asked the bank teller if she was going to mail the letters. Of course, he towers over both the teller and I and he speaks like a child. She looked at him confused but then I said, “she’s a bank teller. She helps people put money in the bank and take money out of the bank”. He seemed to understand better and then carried on a conversation with her about how his friend at school has her same name. We finished our transaction and Darrin waved and said “Bye teller!”. From the time we entered the bank until we left, we had so many looks. By the time he said “Bye teller!” you could see a lot of eyes lift in delight. He brings the joy.
Next, we go to UPS. Now, this one was confusing because Darrin knows all about the post office and the process of letters getting to destinations and was trying to ask questions since we weren’t in the post office. The UPS worker was NOT interested in interacting with Darrin at all. So, Darrin blew him a kiss. No ego-aware of person’s suffering-doesn’t take it personal.
Finally, we make it to Target. Darrin has to use the restroom.
We both go in and I beat him out. At the door, I hear him speaking. I don’t worry about it. It’s the script. Another woman approaches the men’s restroom with her kids. She tells her young son-probably 5-“don’t let anyone touch you.” Then, a grown man nearby says, “There’s some weird guy in there talking to himself”. I flare up. I get full mama bear and in a polite but matter of fact voice I say, “He’s not weird. He has autism.” It shut the guy down and he walked away with his head down. Then, the mom and I proceeded to talk about shoes and waiting for spring.
Four minutes later, I call into the bathroom, “Darrin, I’m still out here waiting”. His reply, “I’m still here”. Of course he is. In the moment. No ego.
So, the next time you’re in a public place and someone is talking to themselves in disjointed sentences, or flinging their hands around in a nonsensical manner, yeah – they might be drunk or high. But, they may also have autism. If you’re not in danger, maybe mind your own business. Or, you could be surprised if you engage in a conversation with them and let them bring some joy into your world.
Finally, these are our kids.
They are just as much a part of our community as all the red heads. They have value. They are real and have real emotions just like you and I. Help me love our kids up and in turn lift our community.
Here’s some more info:
About Autism
About Tourette’s Syndrome
Stay well, friends. You are important.